New Parkinson’s Disease Therapy eBook

As you may know, The Theracycle is a motorized therapy bicycle uniquely designed for individuals with PD (and other movement disorders). Because the Theracycle is motorized, it allows individuals to easily maintain the consistent pedaling cadence of forced exercise therapy.

Research has shown that a therapy of assisted high-cadence cycling, referred to as “forced exercise,” significantly reduces the symptoms of Parkinson’s disease.

We’ve written and published an eBook that provides an overview of the Cleveland Clinic’s findings on forced exercise, as well as commentary from doctors and therapists about the therapy and their experiences.

This new eBook is titled:
A New Therapy Brings Hope & Results to People with Parkinson’s Disease

Click here to register and download our eBook to learn more about forced exercise or to share what you’ve learned with your doctor.

Boston Herald on Theracycle: “Parkinson’s sufferers will reap benefits”

Fans of the Theracycle will want to read this just-published (2-15-12) article written by Boston Herald business reporter Brendan Lynch titled “Exercise Bike Reinvented– Parkinson’s sufferers will reap benefits”  featuring an interview with Peter Blumenthal.

Read on below or see the article at the BostonHerald.com website at  bit.ly/wPBTRa

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Boston Herald
Exercise bike reinvented
Parkinson’s sufferers will reap benefits

By Brendan Lynch            Wednesday, February 15, 2012
http://www.bostonherald.com  |  Technology Coverage

 

Article URL: http://www.bostonherald.com/business/technology/general/view.bg?articleid=1403672

A Franklin company bought out of bankruptcy in 2002 has landed federal funding for its “forced exercise” technology — motorized exercise equipment — to help treat people suffering from Parkinson’s disease.

“It sounds counter-intuitive,” Theracycle CEO Peter Blumenthal told the Herald. “Why would you ever use an exercise bike with motors? But you can overcome the motors as you regain strength.”

Theracycle won a $200,000 Small Business Innovation Research grant to modify its bike to replicate a therapeutic effect caused by tandem bicycle riding discovered by a Cleveland Clinic study.

In August, the company plans to apply for a Phase II SBIR grant, which could be as high as $2 million, to prove the bike would be effective in treating Parkinson’s.

People with Parkinson’s or other mobility-limiting conditions, such as multiple sclerosis, stroke, cerebral palsy or spinal cord injuries, often don’t exercise at all because it’s so difficult, which exacerbates their condition.

“(Exercise) gives the same benefit a healthy individual gets, except it’s much more important,” Blumenthal said. “Since their bodies are so decimated, they get secondary conditions, like Type 2 Diabetes, poor circulation, stiffness.”

Blumenthal once owned the retail chain Frame King, but sold it in 1998 for “between $5 million and $10 million.” In 1999, he was struck by a car in Newton while riding a bike. He broke his neck, but was not paralyzed.

“When I started rehab I found it was impossible to use traditional exercise equipment,” he said. “I couldn’t do it.”

In 2002, a friend told him about The Exercycle Co. He bought the 60-year-old Rhode Island company out of bankruptcy for $150,000, moved it to Franklin, and changed its name to Theracycle to reflect its new status as a medical device.

The company, with about eight employees, is moving toward profitability, Blumenthal said, and sells the bikes to homes and hospitals for $3,000 to $5,500.

Blumenthal is confident in Theracycle’s market opportunity — there are 1.5 million people with Parkinson’s disease in the United States.

“If we could get 1 percent of that market, that’s 15,000 bicycles,” he said. “That becomes a $75 million business.”

Article URL: http://www.bostonherald.com/business/technology/general/view.bg?articleid=1403672

Copyright: Boston Herald

First-person accounts of people now living better with Parkinson’s disease.

From time to time the Theracycle team sends out articles and materials that we think may be informative and helpful. Recently, we created a new eBook titled “First-person accounts of people now living better with Parkinson’s disease.”

This new eBook details the personal stories of five people with Parkinson’s who’ve been riding a Theracycle and are experiencing the benefits of exercising on their Theracycle. They’re not only seeing substantial reductions in symptoms, but also improving their quality of life.

If you’re interested in getting a copy of the eBook, send me an email and I’ll be happy to send you one: pr@exercycle.com

In the meantime, for a preview of the eBook click here to read the personal story of one of the 5 people profiled: Dave Davenport

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Resource Guide for Young Onset Parkinson’s

While the average age of onset of PD is estimated at 60 years of age, between 5-10% of Parkinson’s patients contract “Young Onset” Parkinson’s disease (between the ages of 20 and 50).

The American Parkinson Disease Association (APDA) is the only Parkinson’s association in the U.S. with a Center dedicated to meeting the needs of those with young onset Parkinson’s disease.

The Theracycle Blog went to Julie Sacks, LCSW — Director, APDA National Young Onset Center in Winfield, IL (USA) for her advice and insights for the YOPD population:

Julie shares this comment:

“Discovering that you have Parkinson’s disease, especially when you are young, is overwhelming. Even if you’ve suspected it for some time (and it’s a relief to finally know what you’re dealing with) a confirmed diagnosis is still a shock and many people don’t know where to turn for support.”

In addition to educating people about the disease itself, the APDA National Young Onset Center ( http://www.youngparkinsons.org) has an online Resource Guide that consists of low-cost or no-cost programs and services available to help people manage other areas of concern such as: healthcare, mental health, insurance, employment, disability and finances.  It is easily accessible online at www.youngparkinsons.org/resource-guide.

This Resource Guide was created in order to direct people with Parkinson’s to reliable, affordable services. It was also designed to be interactive, so don’t hesitate to share your experience(s) with currently listed resources or recommend new ones.  The more involved the community is in growing the Resource Guide the more helpful it will be.

Julie let us know that members of the Center’s staff are also available Monday – Friday (9am-5pm CST) to discuss resources by phone at 877- 223-3801.

Beyond its informative website and Resource Guide, YoungParkinsons.org also maintains the excellent Young Parkinson’s Blog and publishes a free monthly eNewsletter.

Dedicated since 1961 to “ease the burden and find a cure for Parkinson’s disease,” the APDA is a major leader in research/education/public education and support for patients and families with PD. The Theracycle Team highly commends the APDA and its National Young Onset Center for their good works, and recommends their helpful resources and tools.

 

Davis Phinney Foundation: Exercise helps people with Parkinson’s “live better” today

The Triumphant & Victorious Davis Phinney-- Theracycle's Hero

As a company who builds exercise bikes for people with Parkinson’s and other movement disorders, it should come as no surprise that Davis Phinney is a hero of ours!

For those who don’t know of him, Colorado-based Davis Phinney is a retired professional cyclist (and 1984 Olympic medalist) who at the age of 40 was diagnosed with early onset Parkinson’s 12 years ago. A perpetual motion machine, Davis has led bicycle tours and conducted cycle-related fundraisers for PD research for many years.

In 2004, he founded The Davis Phinney Foundation (DPF), which is dedicated to helping people with Parkinson’s disease to “live well today,” through educational programs, events and, the funding of research focused on exercise, speech and other quality of life therapies.

DPF-funded research includes support for multiple projects directed by Theracycle’s own official Medical Advisor, Boston University Prof. Terry Ellis, PT, PhD, NCS including her 2010 study: “Factors Associated With Exercise Behavior in People With Parkinson Disease.”

For all these reasons, it is with great pride, that we share this first guest blog post from the tremendous team at the Davis Phinney Foundation — among the most dedicated and enthusiastic Parkinson’s exercise ambassadors we know!

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Bicycling helping people with Parkinson’s curb their symptoms

Image Credit: Matt McClain/Washington Post

As its title suggests, a January 10, 2012 feature article in The Washington Post (Bicycling and other exercise may help people with Parkinson’s curb their symptoms,) states “while it cannot cure Parkinson’s, heavy-duty exercise shows promise for countering, even delaying, the inability to move that the disease causes.”

In her article, Post reporter Alice Reid details results that medical researchers and Parkinson’s patients are seeing from regular, intense exercise (such as rowing and cycling)

The article notes that the National Parkinson Foundation “emphasizes exercise as an important tool to fight the disease,” and “The Michael J. Fox Foundation for Parkinson’s Research has funded close to $3 million in exercise research.”

Jay Alberts, the Cleveland Clinic researcher best known for his landmark work on “Forced Exercise” (cycling for Parkinson’s therapy) is quoted throughout the piece. A ‘just-completed study’ conducted by Alberts in which patients rode indoor bikes for exercise benefits is featured prominently.

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Susie’s Theracycle Story: M.S. Cycling Therapy at Home

Theracycle Motorized Exercise Bike

One of the most fulfilling things about being part of our work is receiving unsolicited messages from customers on how Theracycle exercise has improved the quality of their lives.

Susie Feldmeyer of Pennsylvania has been living with progressive Multiple Sclerosis for 11 years, and wrote us recently saying:

“My life has changed IMMENSELY since receiving the Theracycle!! 
I have been on the bike everyday but one, and every single thing I do has changed for the better.”

When Susie’s nurse practitioner recently told her she loves her Theracycle so much she should sell them for us, Susie replied saying “If I could drive I would be going to every physical therapy and Neurologist office this side of Pennsylvania.”

Whether for MS, for Parkinson’s disease or stroke — Theracycle customers have weighed in with enthusiastic testimonials on benefits they’ve seen from Theracycle exercise. From people with movement disorders like spinal cord injuries, arthritis or obesity who are Theracycling at home, to physicians, physical therapists and fitness specialties who recommend it to their patients — the Theracycle is getting rave reviews and powering inspiring stories of individual determination!

While we try to be ‘non-commercial’ on The Theracycle Blog, we can’t resist sharing Susie Feldmeyer’s Theracycle Story, in her own inspiring words…

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Art & Laughter as Parkinson’s Therapies

Anne's "Painting with Parkinson's" Group

Innovative therapies for people with Parkinson’s disease are originating and being practiced all over the world. From Australia via the Pacific Northwest comes this write-up “Art, laughter are therapy for PD group.” Written by Anne Atkin — volunteer, public speaker, ambassador and librarian with Australia-based Parkinson’s Victoria. as well as author of a new book: “Living and Laughing with Parkinsons”

Anne began her first “Painting with Parkinson’s” group in 2007, parlaying her love of art and experience as a teacher into benefit for others with Parkinson’s. Anne’s article was orginally published in the Nov/Dec 2011 issue of The Parkinson’s Post, bi-monthly newsletter of the Northwest Parkinson’s Foundation (www.nwpf.org). The mission of this Seattle-based organization is “to establish an optimal quality of life for the Northwest Parkinson’s community through awareness, education, advocacy and care.”

Special thanks to Ruth Egger of the NWPF for permission to reprint the article.

Here’s Anne Atkin’s article “Art, laughter are therapy for PD group”

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Parkinson’s Nutrition: Concerns & Recommendations

The Holiday Season is over!   With the New Year, it’s time to get back to healthy eating!

Proper nutrition for people with Parkinson’s disease is a recurring theme here at The Theracycle Blog.  Thus we’re glad to post a very informative write up on concerns and recommendations for Parkinson’s nutrition, courtesy of the California Parkinson’s Group (www.calparkinsons.org), whose mission is to “foster support and collaboration among friends and families with young onset Parkinson’s Disease through dialogue, education and involvement in the medical research community.”

Be sure to visit the CPG for a collection of useful PD materials and to participate in their forums: www.calparkinsons.org

Don't forget to eat your prunes!

Your mother always told you to “EAT YOUR PRUNES!” Read on to learn why and other helpful insights in “Significance of Nutrition in Parkinson’s” from our friends at the CPG.

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Contact Congress Today to Save SBIR

Call or Email Congress NOW to Save SBIR

If you’ve been following the Theracycle Blog, you may know that we recently received a hard-to-land NIH-SBIR grant to fund research and product development of new Theracycles to benefit people with Parkinson’s disease..

What you may not know (but should)–  is that the 30 year old SBIR (Small Business Innovation Research) program is a political hot potato on Capitol Hill in Washington, D.C. Of real concern to us is the possibility of the expiration of SBIR programs on December 16, 2011!!

For all of you who share our belief in the importance of continued federal funding of SBIR, please read this urgent appeal from U.S. Senator Mary Landrieu with her clarion call for us to call or email our U.S. Representative to express our strong support to save SBIR…

Please Tweet this message to “Contact Congress Today to Save SBIR”  http://bit.ly/v01T87

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