Contact Congress Today to Save SBIR

Call or Email Congress NOW to Save SBIR

If you’ve been following the Theracycle Blog, you may know that we recently received a hard-to-land NIH-SBIR grant to fund research and product development of new Theracycles to benefit people with Parkinson’s disease..

What you may not know (but should)–  is that the 30 year old SBIR (Small Business Innovation Research) program is a political hot potato on Capitol Hill in Washington, D.C. Of real concern to us is the possibility of the expiration of SBIR programs on December 16, 2011!!

For all of you who share our belief in the importance of continued federal funding of SBIR, please read this urgent appeal from U.S. Senator Mary Landrieu with her clarion call for us to call or email our U.S. Representative to express our strong support to save SBIR…

Please Tweet this message to “Contact Congress Today to Save SBIR”  http://bit.ly/v01T87

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Delay the Disease – Exercise to Fight Parkinson’s Symptoms

Delay the Disease is a fitness plan and community-based exercise program designed to empower people with Parkinson’s disease (PD) to optimize their physical function.  Originating in Columbus, Ohio in 2007, Delay The Disease is quickly becoming a national phenomenon in the Parkinson’s prevention field, and is starting to become internationally acknowledged.

Delay the Disease founders (David Zid BA, ACE, APG and Jackie Russell, RN, BSN, CNOR) have expertise in working with individuals diagnosed with PD and offer training to other health care professionals nationally.  This program is based on current evidenced-based research, and Zid’s extensive experience with one/on/one training of people with PD.  Their goal is to demonstrate how exercise can change symptoms, foster optimism and allow individuals to maintain independence.  They believe that fighting this disease with hope is the key.

David and Jackie have spoken to over 20,000 People with Parkinson’s (PWP) and their families— at symposia, continuing education courses, and PWP workshops.

As PD affects the entire family, their programs focus on helping the individual, caring for the caregiver, and educating other healthcare professionals about the importance of Parkinson’s–specific exercise and therapy. They are passionate and enthusiastic that PD does not need to define a person; it can be managed with the appropriate “tools in the tool box of treatment”. And, as Jackie comments regularly “exercise is a very important tool.”

Delay the Disease is available in a book, and 2 DVDs. Learn more about Delay the Disease at www.delaythedisease.com.  Books and DVDs can be ordered from the website, or through Amazon.

November is “National Family Caregivers Month”

In case you didn’t know it— November is “National Family Caregivers Month”.

According to the National Alliance for Caregiving, more than than 65 million people (29% of the U.S. population), provide care for a chronically ill, disabled or aged family member or friend during any given year and spend an average of 20 hours per week providing care for their loved one.

For 15 years, the National Family Caregivers Association (NFCA), has recognized and celebrated family caregivers. Identifying Family Caregivers! is the theme for National Family Caregivers Month 2011.

Theracycle is an ardent supporter of “National Family Caregivers Month,” and we hope you’ll join us in supporting the mission of the NFCA to educate, support, empower and speak up for the millions of Americans who give so much of themselves to provide for the health and well-being of a beloved family member.

To join or donate to the NFCA visit: http://www.nfcacares.org/join_nfca/

“Parkinson’s isn’t my life. I have Parkinson’s. Why does it have to have to be my life?”

Here’s another post from our friend and Guest Blogger Marc Sherman, who regularly chronicles what he calls his “journey and struggle through the life changes attributed to the onset of Parkinson’s Disease.” in his “But This is the Hand That I Shoot With” blog.

“Parkinson’s isn’t my life. I have Parkinson’s. Why does it have to have to be my life?

By Marc Sherman

The quote comes from the movie, “Love and Other Drugs.”  The movie was both fluff and at times true to life.  The quote “Parkinson’s isn’t my life. I have Parkinson’s. Why does it have to be my life?”  stuck with me, and made me wonder, is it my life?  If so, is it possible for it not to be my life?

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Groucho Marx: Parkinson’s Specialist

 

Marc Sherman is a 54 year old attorney who lives in Forrest Hills, NY. He describes himself as I “someone who loved childhood, and in a sense, never really left it.”

Diagnosed with Parkinson’s disease in 2006 (an event that Marc says “should have caused me to leave childhood and become an adult,” Marc Sherman puts his legal expertise to work for The People with Parkinson’s Advisory Council of the National Parkinson’s Foundation. Marc is also the host of the Living with PD blog where he discusses his experiences living with Parkinson’s, often through witty parodies…

Forget the Mayo Brothers… Marc turned instead to The Marx Brothers for their diagostic and clinical expertise in treating his Parkinson’s disease, as you’ll read in his latest post:

A Night At The Doctors

 

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Free eBook for People with Parkinson’s Disease

If you or someone you care about has Parkinson’s disease, you’ll be interested in reading a free new eBook on a successful new therapy that is helping people with PD substantially reduce their symptoms.

Entitled “How a New Therapy Brings Hope & Results to People with Parkinson’s Disease” click here to download the Free eBook from the Theracycle website.