New Parkinson’s Disease Therapy eBook

As you may know, The Theracycle is a motorized therapy bicycle uniquely designed for individuals with PD (and other movement disorders). Because the Theracycle is motorized, it allows individuals to easily maintain the consistent pedaling cadence of forced exercise therapy.

Research has shown that a therapy of assisted high-cadence cycling, referred to as “forced exercise,” significantly reduces the symptoms of Parkinson’s disease.

We’ve written and published an eBook that provides an overview of the Cleveland Clinic’s findings on forced exercise, as well as commentary from doctors and therapists about the therapy and their experiences.

This new eBook is titled:
A New Therapy Brings Hope & Results to People with Parkinson’s Disease

Click here to register and download our eBook to learn more about forced exercise or to share what you’ve learned with your doctor.

First-person accounts of people now living better with Parkinson’s disease.

From time to time the Theracycle team sends out articles and materials that we think may be informative and helpful. Recently, we created a new eBook titled “First-person accounts of people now living better with Parkinson’s disease.”

This new eBook details the personal stories of five people with Parkinson’s who’ve been riding a Theracycle and are experiencing the benefits of exercising on their Theracycle. They’re not only seeing substantial reductions in symptoms, but also improving their quality of life.

If you’re interested in getting a copy of the eBook, send me an email and I’ll be happy to send you one: pr@exercycle.com

In the meantime, for a preview of the eBook click here to read the personal story of one of the 5 people profiled: Dave Davenport

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Bookmarks for Parkinson’s e-Patients

 

e-Patient Dave

ePatient Dave (aka Dave DeBronkart) is one of my personal heroes. While many pay lip service to helping patients to help themselves– Dave is a synonym for “patient advocate,” who through his myriad activities, speaking engagements and informative epatientdave.com website is a tireless champion for patient engagement and source of ideas and inspiration on how to use the Web for better patient outcomes.

This week Dave up a post on his website on e-Patient Resources for Parkinson’s Disease, which provides some basic info that’s worth a look from anyone interested in PD. As I’ve known Dave for several years, I reached out to him to provide a more in-depth (but, admittedly incomplete) listing of some of the top online resources for people with Parkinson’s disease, as well as PD caregivers and professionals. Here’s (for those who follow The Theracycle Blog) is the list of Bookmarks for Parkinson’s e-Patients, that we prepared and sent to ePatient Dave…

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Davis Phinney Foundation: Exercise helps people with Parkinson’s “live better” today

The Triumphant & Victorious Davis Phinney-- Theracycle's Hero

As a company who builds exercise bikes for people with Parkinson’s and other movement disorders, it should come as no surprise that Davis Phinney is a hero of ours!

For those who don’t know of him, Colorado-based Davis Phinney is a retired professional cyclist (and 1984 Olympic medalist) who at the age of 40 was diagnosed with early onset Parkinson’s 12 years ago. A perpetual motion machine, Davis has led bicycle tours and conducted cycle-related fundraisers for PD research for many years.

In 2004, he founded The Davis Phinney Foundation (DPF), which is dedicated to helping people with Parkinson’s disease to “live well today,” through educational programs, events and, the funding of research focused on exercise, speech and other quality of life therapies.

DPF-funded research includes support for multiple projects directed by Theracycle’s own official Medical Advisor, Boston University Prof. Terry Ellis, PT, PhD, NCS including her 2010 study: “Factors Associated With Exercise Behavior in People With Parkinson Disease.”

For all these reasons, it is with great pride, that we share this first guest blog post from the tremendous team at the Davis Phinney Foundation — among the most dedicated and enthusiastic Parkinson’s exercise ambassadors we know!

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Bicycling helping people with Parkinson’s curb their symptoms

Image Credit: Matt McClain/Washington Post

As its title suggests, a January 10, 2012 feature article in The Washington Post (Bicycling and other exercise may help people with Parkinson’s curb their symptoms,) states “while it cannot cure Parkinson’s, heavy-duty exercise shows promise for countering, even delaying, the inability to move that the disease causes.”

In her article, Post reporter Alice Reid details results that medical researchers and Parkinson’s patients are seeing from regular, intense exercise (such as rowing and cycling)

The article notes that the National Parkinson Foundation “emphasizes exercise as an important tool to fight the disease,” and “The Michael J. Fox Foundation for Parkinson’s Research has funded close to $3 million in exercise research.”

Jay Alberts, the Cleveland Clinic researcher best known for his landmark work on “Forced Exercise” (cycling for Parkinson’s therapy) is quoted throughout the piece. A ‘just-completed study’ conducted by Alberts in which patients rode indoor bikes for exercise benefits is featured prominently.

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Susie’s Theracycle Story: M.S. Cycling Therapy at Home

Theracycle Motorized Exercise Bike

One of the most fulfilling things about being part of our work is receiving unsolicited messages from customers on how Theracycle exercise has improved the quality of their lives.

Susie Feldmeyer of Pennsylvania has been living with progressive Multiple Sclerosis for 11 years, and wrote us recently saying:

“My life has changed IMMENSELY since receiving the Theracycle!! 
I have been on the bike everyday but one, and every single thing I do has changed for the better.”

When Susie’s nurse practitioner recently told her she loves her Theracycle so much she should sell them for us, Susie replied saying “If I could drive I would be going to every physical therapy and Neurologist office this side of Pennsylvania.”

Whether for MS, for Parkinson’s disease or stroke — Theracycle customers have weighed in with enthusiastic testimonials on benefits they’ve seen from Theracycle exercise. From people with movement disorders like spinal cord injuries, arthritis or obesity who are Theracycling at home, to physicians, physical therapists and fitness specialties who recommend it to their patients — the Theracycle is getting rave reviews and powering inspiring stories of individual determination!

While we try to be ‘non-commercial’ on The Theracycle Blog, we can’t resist sharing Susie Feldmeyer’s Theracycle Story, in her own inspiring words…

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Holiday Recommendations from an MD with PD

One of our favorite resources for events, programs and general information for the Parkinson’s community is the American Parkinson Disease Association.
Here’s a timely post from their National Young Onset Center written by Marshall “Dopadoc” Davidson— a New Jersey-based M.D. who was diagnosed with early-onset Parkinson’s disease back in 2005, when he was 44.

Beyond this article, Marshall runs a blog called “Dopadoc’s Parkinson’s Journal”  http://www.dopadoc.com and is worth a follow on Twitter: @dopadoc.

Here’s Marshall Davidson’s “New Years and Holiday Recommendations for Parkinson’s Sufferers”

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Contact Congress Today to Save SBIR

Call or Email Congress NOW to Save SBIR

If you’ve been following the Theracycle Blog, you may know that we recently received a hard-to-land NIH-SBIR grant to fund research and product development of new Theracycles to benefit people with Parkinson’s disease..

What you may not know (but should)–  is that the 30 year old SBIR (Small Business Innovation Research) program is a political hot potato on Capitol Hill in Washington, D.C. Of real concern to us is the possibility of the expiration of SBIR programs on December 16, 2011!!

For all of you who share our belief in the importance of continued federal funding of SBIR, please read this urgent appeal from U.S. Senator Mary Landrieu with her clarion call for us to call or email our U.S. Representative to express our strong support to save SBIR…

Please Tweet this message to “Contact Congress Today to Save SBIR”  http://bit.ly/v01T87

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Is Exercise the New Drug for Parkinson’s Disease?

 In our earlier post, “Delay the Disease – Exercise to Fight Parkinson’s Symptoms” you met David Zid and Jackie Russell, the founders of Delay the Disease—an exercise program developed specifically for people with Parkinson’s disease.

Here in her first guest post for the Theracycle Blog, Jackie Russell provides her expert opinion on the topic “Is Exercise the New Drug for Parkinson’s Disease?”

 

 

 

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Delay the Disease – Exercise to Fight Parkinson’s Symptoms

Delay the Disease is a fitness plan and community-based exercise program designed to empower people with Parkinson’s disease (PD) to optimize their physical function.  Originating in Columbus, Ohio in 2007, Delay The Disease is quickly becoming a national phenomenon in the Parkinson’s prevention field, and is starting to become internationally acknowledged.

Delay the Disease founders (David Zid BA, ACE, APG and Jackie Russell, RN, BSN, CNOR) have expertise in working with individuals diagnosed with PD and offer training to other health care professionals nationally.  This program is based on current evidenced-based research, and Zid’s extensive experience with one/on/one training of people with PD.  Their goal is to demonstrate how exercise can change symptoms, foster optimism and allow individuals to maintain independence.  They believe that fighting this disease with hope is the key.

David and Jackie have spoken to over 20,000 People with Parkinson’s (PWP) and their families— at symposia, continuing education courses, and PWP workshops.

As PD affects the entire family, their programs focus on helping the individual, caring for the caregiver, and educating other healthcare professionals about the importance of Parkinson’s–specific exercise and therapy. They are passionate and enthusiastic that PD does not need to define a person; it can be managed with the appropriate “tools in the tool box of treatment”. And, as Jackie comments regularly “exercise is a very important tool.”

Delay the Disease is available in a book, and 2 DVDs. Learn more about Delay the Disease at www.delaythedisease.com.  Books and DVDs can be ordered from the website, or through Amazon.