Delay the Disease – Exercise to Fight Parkinson’s Symptoms

Delay the Disease is a fitness plan and community-based exercise program designed to empower people with Parkinson’s disease (PD) to optimize their physical function.  Originating in Columbus, Ohio in 2007, Delay The Disease is quickly becoming a national phenomenon in the Parkinson’s prevention field, and is starting to become internationally acknowledged.

Delay the Disease founders (David Zid BA, ACE, APG and Jackie Russell, RN, BSN, CNOR) have expertise in working with individuals diagnosed with PD and offer training to other health care professionals nationally.  This program is based on current evidenced-based research, and Zid’s extensive experience with one/on/one training of people with PD.  Their goal is to demonstrate how exercise can change symptoms, foster optimism and allow individuals to maintain independence.  They believe that fighting this disease with hope is the key.

David and Jackie have spoken to over 20,000 People with Parkinson’s (PWP) and their families— at symposia, continuing education courses, and PWP workshops.

As PD affects the entire family, their programs focus on helping the individual, caring for the caregiver, and educating other healthcare professionals about the importance of Parkinson’s–specific exercise and therapy. They are passionate and enthusiastic that PD does not need to define a person; it can be managed with the appropriate “tools in the tool box of treatment”. And, as Jackie comments regularly “exercise is a very important tool.”

Delay the Disease is available in a book, and 2 DVDs. Learn more about Delay the Disease at www.delaythedisease.com.  Books and DVDs can be ordered from the website, or through Amazon.

Lianna Marie – Super Parkinson’s Family Caregiver

Lianna Marie & Her Mom (Val)

In recognition of National Family Caregivers Month, Theracycle would like to single out someone who stands out as an extraordinary caregiver:

Lianna Marie of Bellingham, WA, whose mother Val was diagnosed with Parkinson’s disease back in 1991. Since then, beyond providing extraordinary care for her mother, Lianna has become an extraordinary force of nature, driven to help families through their Parkinson’s journeys.

Among Lianna’s contributions:

  • Author and publisher of a valuable eBook:
    “Everything You Really Need to Know About Parkinson’s Disease”
    For $27 this book and the related bonus content that comes with a purchase, Lianna answers a huge number of common questions about life with PD, as well as tips, advice, stories, and words of encouragement and inspiration
  • Host and Moderator of the Parkinsons Disease Forum
    A vibrant online community, where people with Parkinson’s and those who care about them can connect online get help, advice, friendship and support.
  • Blogger and Editor of the AllAboutParkinsons.com Blog
    Beyond providing a platform for the Parkinsons Disease Forum, Lianna’s AllAboutParkinson.com blog serves up a steady stream of news and information, resource links and articles about PD.  This is definitely one to add to your blog list, and we’ll be adding it soon to the Theracycle bloglist of best Parkinson’s blogs!

Theracycle honors Lianna’s labors of love and her extraordinary example of a model caregiver. In recognition of Lianna’s past and ongoing efforts and in celebration National Family Caregivers Month, here’s her article 7 Helpful Tips To Help You Care For The Person You Know Or Love.”

Keep it up Lianna!

“Parkinson’s isn’t my life. I have Parkinson’s. Why does it have to have to be my life?”

Here’s another post from our friend and Guest Blogger Marc Sherman, who regularly chronicles what he calls his “journey and struggle through the life changes attributed to the onset of Parkinson’s Disease.” in his “But This is the Hand That I Shoot With” blog.

“Parkinson’s isn’t my life. I have Parkinson’s. Why does it have to have to be my life?

By Marc Sherman

The quote comes from the movie, “Love and Other Drugs.”  The movie was both fluff and at times true to life.  The quote “Parkinson’s isn’t my life. I have Parkinson’s. Why does it have to be my life?”  stuck with me, and made me wonder, is it my life?  If so, is it possible for it not to be my life?

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Groucho Marx: Parkinson’s Specialist

 

Marc Sherman is a 54 year old attorney who lives in Forrest Hills, NY. He describes himself as I “someone who loved childhood, and in a sense, never really left it.”

Diagnosed with Parkinson’s disease in 2006 (an event that Marc says “should have caused me to leave childhood and become an adult,” Marc Sherman puts his legal expertise to work for The People with Parkinson’s Advisory Council of the National Parkinson’s Foundation. Marc is also the host of the Living with PD blog where he discusses his experiences living with Parkinson’s, often through witty parodies…

Forget the Mayo Brothers… Marc turned instead to The Marx Brothers for their diagostic and clinical expertise in treating his Parkinson’s disease, as you’ll read in his latest post:

A Night At The Doctors

 

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Best Parkinson’s Blogs

People have a lot to say and share about Parkinson’s Disease.

From “patients” (hate that word”) to caregivers, physical therapists, researchers, medical professionals, associations and membership groups — there are THOUSANDS of blogs online which are focused on various aspects of Parkinson’s.

With so many blogs to choose from, you may be asking: “Which are the Best Parkinson’s Blogs on the Web?”  

Over the months to come, The Theracycle Blog will research, identify and let you know which blogs we’ve seen that stand out in the crowd for the quality of the information they deliver, the passion of their tone, and other distinguishing features that set them apart.

Are you a Parkinson’s Blogger?

If you are— We’re actively seeking guest blog posts and we’d we’d love to hear from you.

Who’s on your Bloglist? What blogs do you follow? Visit regularly?

While not a comprehensive list, a list of “40 Blogs to Follow for Parkinson’s Awareness Month” that was posted in April 2011 on Nursingschools.net includes a solid compendium of some of the best PD blogs today.

Here courtesy of NursingSchools.net is their the list of “40 Blogs to Follow for Parkinson’s Awareness Month” 

Hope you find it interesting and helpful.

Let us know — We’re listening!