Bookmarks for Parkinson’s e-Patients

 

e-Patient Dave

ePatient Dave (aka Dave DeBronkart) is one of my personal heroes. While many pay lip service to helping patients to help themselves– Dave is a synonym for “patient advocate,” who through his myriad activities, speaking engagements and informative epatientdave.com website is a tireless champion for patient engagement and source of ideas and inspiration on how to use the Web for better patient outcomes.

This week Dave up a post on his website on e-Patient Resources for Parkinson’s Disease, which provides some basic info that’s worth a look from anyone interested in PD. As I’ve known Dave for several years, I reached out to him to provide a more in-depth (but, admittedly incomplete) listing of some of the top online resources for people with Parkinson’s disease, as well as PD caregivers and professionals. Here’s (for those who follow The Theracycle Blog) is the list of Bookmarks for Parkinson’s e-Patients, that we prepared and sent to ePatient Dave…

Bookmarks for Parkinson’s e-Patients
(Source: The Theracycle Blog

Associations and Foundations focused on Parkinson’s Disease:

American Parkinson Disease Association                         www.apdaparkinson.org

California Parkinson Group                                               www.calparkinsons.org/

Davis Phinney Foundation                                                 www.davisphinneyfoundation.org

Michael J. Fox Foundation for Parkinson’s Research       www.michaeljfox.org

National Parkinson Foundation                                          www.parkinson.org

National Young Onset Center (part of APDA)                    www.youngparkinsons.org

Northwest Parkinson Disease Foundation                         www.nwpf.org

Parkinson Disease Foundation                                          www.pdf.org

World Parkinson Disease Foundation  (Italy)                     http://www.wpda.org/

Online Patient Communities

Parkinson’s Patients Support Group             www.ppsg.org/

Parkinsons Disease Forum                             http://www.allaboutparkinsons.com/forum/

PatientsLikeMe                                              http://www.patientslikeme.com

23andme                                                       https://www.23andme.com/pd/

Parkinson’s Blogs:

All About Parkinson’s Blog     http://www.allaboutparkinsons.com/

Parkinson’s Blog Network     http://www.parkinsonsblognetwork.com/

The Theracycle Blog              http://blog.theracycle.com/

Parkinson’s Bloglist                http://www.theracycle.com/articles/Theracycle-Bloglist.aspx

Other:

Delay the Disease                   http://delaythedisease.com/

Fight for More                         http://www.fightformore.com/

The Parkinson Alliance           http://www.parkinsonalliance.org/

Parkinson’s Institute               http://www.thepi.org/

PD Online Research              http://www.pdonlineresearch.org/

Parkinson’s UK                      http://www.parkinsons.org.uk/

Parkinson’s Unity Walk          http://www.unitywalk.org/

Ride with Larry                       http://ridewithlarrymovie.com/

World Parkinson’s
Congress  (October 2013)     http://www.worldpdcongress.org/

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Apologies for any inadvertent omissions. We welcome your suggestions for additions to this initial list. Send them to pr@exercycle.com

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