Bookmarks for Parkinson’s e-Patients


e-Patient Dave

ePatient Dave (aka Dave DeBronkart) is one of my personal heroes. While many pay lip service to helping patients to help themselves– Dave is a synonym for “patient advocate,” who through his myriad activities, speaking engagements and informative website is a tireless champion for patient engagement and source of ideas and inspiration on how to use the Web for better patient outcomes.

This week Dave up a post on his website on e-Patient Resources for Parkinson’s Disease, which provides some basic info that’s worth a look from anyone interested in PD. As I’ve known Dave for several years, I reached out to him to provide a more in-depth (but, admittedly incomplete) listing of some of the top online resources for people with Parkinson’s disease, as well as PD caregivers and professionals. Here’s (for those who follow The Theracycle Blog) is the list of Bookmarks for Parkinson’s e-Patients, that we prepared and sent to ePatient Dave…

Bookmarks for Parkinson’s e-Patients
(Source: The Theracycle Blog

Associations and Foundations focused on Parkinson’s Disease:

American Parkinson Disease Association               

California Parkinson Group                                     

Davis Phinney Foundation                                       

Michael J. Fox Foundation for Parkinson’s Research

National Parkinson Foundation                                

National Young Onset Center (part of APDA)          

Northwest Parkinson Disease Foundation               

Parkinson Disease Foundation                                

World Parkinson Disease Foundation  (Italy)           

Online Patient Communities

Parkinson’s Patients Support Group   

Parkinsons Disease Forum                   



Parkinson’s Blogs:

All About Parkinson’s Blog

Parkinson’s Blog Network

The Theracycle Blog    

Parkinson’s Bloglist      


Delay the Disease         

Fight for More               

The Parkinson Alliance 

Parkinson’s Institute     

PD Online Research    

Parkinson’s UK            

Parkinson’s Unity Walk

Ride with Larry             

World Parkinson’s
Congress  (October 2013)


Apologies for any inadvertent omissions. We welcome your suggestions for additions to this initial list. Send them to

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